- IBD
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The impact of clinical experience on decision-making regarding the treatment and management of mild-to-moderate ulcerative colitis
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Jae Hee Cheon, Kristine Paridaens, Sameer Al Awadhi, Jakob Begun, John R Fullarton, Edouard Louis, Fernando Magro, Juan Ricardo Marquez, Alexander R Moschen, Neeraj Narula, Grazyna Rydzewska, Axel U Dignass, Simon PL Travis
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Intest Res 2023;21(1):161-167. Published online April 18, 2022
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DOI: https://doi.org/10.5217/ir.2022.00006
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- New genetic biomarkers predicting 5-aminosalicylate-induced adverse events in patients with inflammatory bowel diseases
Jihye Park, I. Seul Park, Ji Hyung Kim, Jung Hyun Ji, Soo Jung Park, Jae Jun Park, Tae Il Kim, Seung Won Kim, Jae Hee Cheon Therapeutic Advances in Gastroenterology.2024;[Epub] CrossRef
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- IBD
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IBD2020 global forum: results of an international patient survey on quality of care
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Peter Irving, Johan Burisch, Richard Driscoll, Mats Olsson, John R Fullarton, Barry S Rodgers-Gray, Simon PL Travis
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Intest Res 2018;16(4):537-545. Published online October 10, 2018
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DOI: https://doi.org/10.5217/ir.2018.00041
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Abstract
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- Background/Aims
IBD2020 is a global forum for standards of care in inflammatory bowel disease (IBD). The aim of the IBD2020 survey was to identify and describe variations in quality care of IBD.
Methods Patients with IBD from Finland, Italy, France, Canada, Germany, UK, Spain and Sweden were surveyed during 2013 to 2014, covering: disease characteristics; impact on life and work; organization and perceived quality of care.
Results Seven thousand five hundred and seven patients participated (median age, 39 years [range, 10–103 years]; 2,354 male [31.4%]), including 4,097 (54.6%) with Crohn’s disease (CD) and 3,410 (45.4%) with ulcerative colitis (UC). Median time from symptom onset to diagnosis was 1 year for both CD (range, 0–47 years) and UC (range, 0–46 years), with no clear evidence of improvement in diagnostic delay over the preceding 24 years. Half of the patients (3,429; 50.0%) rated their care as “excellent” or “very good,” with similar results for CD and UC across countries. Five factors were significantly (P<0.01) associated with perceived good quality of care: quality of specialist communication; review consultation being long enough; failure to share information; no access to a dietician; speed of advice.
Conclusions The IBD2020 survey has highlighted areas related to quality of care of IBD from the patients’ perspective, with scope for improvement.
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Citations
Citations to this article as recorded by 
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Katharina M Scheurlen, Mary A Parks, Anne Macleod, Susan Galandiuk Journal of Clinical Medicine.2023; 12(17): 5595. CrossRef - The 2023 Impact of Inflammatory Bowel Disease in Canada: Access to and Models of Care
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Nurulamin M Noor, Paula Sousa, Stéphane Paul, Xavier Roblin Inflammatory Bowel Diseases.2022; 28(8): 1254. CrossRef - Multinational evaluation of clinical decision-making in the treatment and management of mild-to-moderate ulcerative colitis
Axel U. Dignass, Kristine Paridaens, Sameer Al Awadhi, Jakob Begun, Jae Hee Cheon, John R. Fullarton, Edouard Louis, Fernando Magro, Juan Ricardo Marquez, Alexander R. Moschen, Neeraj Narula, Grazyna Rydzewska, Simon P. L. Travis Scandinavian Journal of Gastroenterology.2022; 57(4): 424. CrossRef - Inflammatory bowel disease patient‐reported quality assessment should drive service improvement: a national survey of UK IBD units and patients
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Xavier Calvet, Julián Panés, Javier Gallardo-Escudero, Alberto de la Cuadra-Grande, Elena Bartolomé, Laura Marín, Fernando de la Portilla, Ester Navarro-Correal, Ana Gutiérrez, Pilar Nos, Ruth Serrano, Miguel Ángel Casado, Manuel Barreiro-de Acosta, Pilar Journal of Crohn's and Colitis.2022; 16(11): 1663. CrossRef - Patient-reported Outcomes: the ICHOM Standard Set for Inflammatory Bowel Disease in Real-life Practice Helps Quantify Deficits in Current Care
Darren Wong, Lawrence Matini, Andrey Kormilitzin, Ramona Kantschuster, Daniel Martin Simadibrata, Sara Lyden, Jean Wilson, Oliver A Brain, Rebecca Palmer, Tim Ambrose, Jack Satsangi, Matthew South, John Geddes, Keith Bodger, Simon P L Travis, Alissa Walsh Journal of Crohn's and Colitis.2022; 16(12): 1874. CrossRef - Quality of care in patients with inflammatory bowel disease from a public health center in Brazil
Debora Mayumi Takamune, Giovana Signorelli Astolfi Cury, Giulia Ferrás, Giedre Soares Prates Herrerias, Adriana Rivera, Jaqueline Ribeiro Barros, Julio Pinheiro Baima, Rogerio Saad-Hossne, Ligia Yukie Sassaki World Journal of Clinical Cases.2022; 10(33): 12184. CrossRef - Ulcerative Colitis Narrative Global Survey Findings: Communication Gaps and Agreements Between Patients and Physicians
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