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- Review Pediatric to adult inflammatory bowel disease transition: the Asian experience
-
Bernice Tan
, David Ong -
Intestinal Research 2020;18(1):11-17.
DOI: https://doi.org/10.5217/ir.2019.09144
Published online: January 30, 2020
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- Correspondence to Bernice Tan, Division of Gastroenterology and Hepatology, National University Hospital, 5 Lower Kent Ridge Road, Singapore 119074. Tel: +65-6772-2002, Fax: +65-6772-4361, E-mail: bernice_tan@nuhs.edu.sg
• Received: November 5, 2019 • Revised: December 11, 2019 • Accepted: December 13, 2019
© Copyright 2020. Korean Association for the Study of Intestinal Diseases. All rights reserved.
This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (http://creativecommons.org/licenses/by-nc/4.0/) which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited.
Abstract
- Many tertiary inflammatory bowel disease (IBD) centers recognize that a structured transition program is fundamental for an IBD unit. However, the path to ensuring a seamless transition for all stakeholders is often fraught with challenges. In this review, we go through current evidence, identify the requirementsof a successful transition program, and the barriers to seamless transfer. We also aim to shed light on differences in needs between the Western and Asian adolescent IBD populations. Majority of healthcare providers viewed having a structured transition program to be very important. The lack of a standard protocol led us to come up with a list of requirements ofa successful program. These include: multidisciplinary team meetings, alternating visits between the adultand pediatric clinics, proper documentation of records, and determining the ideal timing for transfer. The difficulties forthe Asian adolescent IBD population may be attributed to the reliance on parental support to make decisions regarding medicaltreatment. Lastly, there are various physician, patient and disease factors which are barriers to seamless transition. These includethe lack of proper documentation, and lack of patient self-efficacy. We also propose a standardized template for documentation of medical records for IBD patients.
INTRODUCTION
METHODS
PERCEPTION OF DOCTORS, CAREGIVERS AND PATIENTS ON TRANSITION
REQUIREMENTS OF A SUCCESSFUL TRANSITION PROGRAM
DIFFERENCES BETWEEN THE NEEDS OF THE WESTERN AND ASIAN ADOLESCENT IBD POPULATION
BARRIERS TO A SEAMLESS TRANSFER
1) Lack of Knowledge and/or Experience
2) Poor Coordination of Care between Adult and Pediatric Providers
1) Poor Health Literacy/Disease-Specific Knowledge
2) Lack of Self-Efficacy
3) High Level of Parental/Caregiver Involvement
CONCLUSION
-
FINANCIAL SUPPORT
The authors received no financial support for the research, authorship, and/or publication of this article.
-
CONFLICT OF INTEREST
No potential conflict of interest relevant to this article was reported.
-
AUTHOR CONTRIBUTION
Writing, methodology: Tan B. Conceptualization: Ong D. Approval of final manuscript: all authors.
NOTES
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Pediatric to adult inflammatory bowel disease transition: the Asian experience
Fig. 1. Proposed template for documentation. MR, magnetic resonance; OD, once daily.
Fig. 1.
Pediatric to adult inflammatory bowel disease transition: the Asian experience
